) It meant he would have moderate-to-severe learning disabilities, physical challenges, and would never have what I thought of as a normal life.CLS is a genetic disorder that affects about one in fifty-thousand births. There was a range of affectation in mental and physical abilities and it was far too soon to know where Michael might fall in that range. There was no cure, and nothing but supportive therapy as he got older. I was heartbroken.My Mom and Dad helped out in those early days, supporting me both financially and emotionally, and my sister Kristen helped, as well. Michael grew slowly. Like most kids with CLS, his coordination, physical growth, and learning were slow to develop. By the time he should have been walking easily on his own, he was barely crawling. His words were not discernible as words until he was almost six, and his sentences were not intelligible until he was eight.There were countless physical and behavioral therapy sessions. He went to special classes for. It’s a lot more comfortable.’ He pulled out a file with a lot of legal documents in it. ‘If you like, you can have your attorney look these over. They give you the sole rights and privileges to write the story of Jeff’s life. He even allowed you the freedom to write whatever you want. The only exclusion is that you aren’t to mention the names of any of his personal contacts. I think you know what I mean.’ ‘Yes, Jeff and I discussed it at length. He stated I could substitute names as long as people wouldn’t know who they really are.’ I glanced through the file. ‘I don’t see any reason to have another attorney see this. It seems pretty straightforward and to the point.’ ‘You can go to any publisher you choose, but Jeff did add one request.’ He handed me a envelope with a check for fifty thousand dollars and another sealed envelope inside. ‘Joe, the check is from Jeff for writing his story. It’s completely separate from anything you get from a publisher. The money was his way of saying.
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